10 January 2010

Some updates and more prayers needed

Some updates... I meant to blog for awhile now. So much has happened but here are 2 of the most important and vital updates that could use prayer.


My Mom

My mom's brain surgery went really well! Although afterwards she was unable to speak at all for several hours. She stayed with us during her physical therapy. She is doing well but continues to have some balance issues. She also has no peripheral vision. Currently she is in Puerto Rico with some of the dance team from church for a conference. I am so happy that she was able to attend after having brain surgery 3 1/2 wks prior to the trip!


Jadae

He had been doing a lot better expect for a pain in his lower right abdominal. Several doctors had examined it and said that it was an inflamed lymph node. All other pain from his Crohn's was pretty much nonexistent expect for this. At the beginning of this past week he was experiencing a lot of pain. Wednesday night was very intense and he could not walk. His lips were white and he felt lightheaded. We called for an ambulance and left for the local ER, me following behind. (my dad was here and watched Malachi).
At the ER they did a CAT scan and the doctors told us that his appendix had ruptured sometime back in Nov. But is was blocked off so it did not kill him. They talked to their surgeons who were uncomfortable with doing the surgery and wanted him sent to Cleveland Clinic, where his Crohn's doctors are. This made us very nervous but the drs reassured us Jadae's life was not in danger.
After finding someone to take Malachi for a several days (it was 2:30 am at this pt) I went home to pack myself and Malachi a bag. I then picked up Jadae's mom and we drove through the night to Cleveland Clinic were we met Jadae.
Thursday doctors came in and examined him and reviewed the CAT scans. It was not a ruptured appendix after all. But his appendix was inflamed. Turns out he had a perforated bowel. Which is quite dangerous as he could become septic and a whole host of other issues.
Friday they did a loop ileostomy at 4 pm. Surgery was completed at 7 but his recovery took a lot longer then expected. Shortly after they sent him to the PACU (surgery recovery room) they gave him too much pain medication- which made him stop breathing. So after they remedied that they were very cautious of how much pain meds they could give him. His heart rate was really fast and he had a very low respiratory count. Finally after 6 am they were able to send him to his room. Jadae's mom and I were able to see him for only 5-10 minutes every 2 hrs.
It was so hard to see him like that. Saturday was a rough day for him. He was in a lot of pain and still have some oxygen problems. Today he was so much better. They did have to give him a blood transfusion today.
This had been the longest that I had ever been away from Malachi. I talked to him every day on the phone but he refused to talk to me until yesterday. Jadae's mom and I went home today. Although Jadae wanted me to be with him he also wanted me home with Malachi. Malachi does not understand what is going on. We could even tell him as he was in bed when the ambulance came.
Jadae is still at Cleveland Clinic. We are not sure how long he will be there. He will be off of work for 6 wks. Then 3-6 months from now he was have another surgery to reverse the stoma. Which he will be off of work again for an extended time period after another hospital stay.
Emotional I am doing ok. Overwhelmed and not understand why so much has been happening. Every month since Oct someone in my immediate fam has been hospitalized. I've cried a lot this past week. Some days my nerves and anxiety were fine, other days I was more of a mess.

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